This is my dumping ground for quotes and other stuff relating to the wonderful world of digital & communications.
interaction between objects, between objects and individuals’ devices, between individuals and other objects, and between objects and back-end systems will result in the generation of data flows that can hardly be managed with the classical tools used to ensure the adequate protection of the data subjects’ interests and rights. For instance, unlike other types of content, IoT-pushed data may not be adequately reviewable by the data subject prior to publication, which undeniably generates a risk of lack of control and excessive self-exposure for the user. Also, communication between objects can be triggered automatically as well as by default, without the individual being aware of it. In the absence of the possibility to effectively control how objects interact or to be able to define virtual boundaries by defining active or non-active zones for specific things, it will become extraordinarily difficult to control the generated flow of data. It will be even more difficult to control its subsequent use, and thereby prevent potential function creep.
the development of IoT clearly raises new and significant personal data protection and privacy challenges2. In fact, if uncontrolled, some developments of the IoT could go as far as develop a form of surveillance of individuals that might be considered as unlawful under EU law. The IoT also raises important security concerns, as security breaches can entail significant privacy risks for the individuals whose data are processed in such contexts. The WP29 has therefore decided to issue the present Opinion in order to contribute to the identification and the monitoring of the risks derived from those activities, where the fundamental rights of citizens of the EU are at stake.
she found that the scientific literature had no studies on patients like this to guide her. So she did something unusual: She searched a database of all the lupus patients the hospital had seen over the previous five years, singling out those whose symptoms matched her patient’s, and ran an analysis to see whether they had developed blood clots. “I did some very simple statistics and brought the data to everybody that I had met with that morning,” she says. The change in attitude was striking. “It was very clear, based on the database, that she could be at an increased risk for a clot.”…
A large, costly and time-consuming clinical trial with proper controls might someday prove Frankovich’s hypothesis correct. But large, costly and time-consuming clinical trials are rarely carried out for uncommon complications of this sort. In the absence of such focused research, doctors and scientists are increasingly dipping into enormous troves of data that already exist — namely the aggregated medical records of thousands or even millions of patients to uncover patterns that might help steer care….
After Frankovich wrote about her experience in The New England Journal of Medicine in 2011, her hospital warned her not to conduct such analyses again until a proper framework for using patient information was in place
Many mathematicians work for the NSA or organizations with ties to it. They’re involved in facial recognition development and big data aspects of mass surveillance. If privacy disappears from the face of the Earth, mathematicians will be some of the primary culprits.
The larger debate is about what companies can do to their users without asking them first or telling them about it after. I asked Facebook yesterday what the review process was for conducting the study in January 2012, and its response reads a bit tone deaf. The focus is on whether the data use was appropriate rather than on the ethics of emotionally manipulating users to have a crappy day for science.
Silicon Valley firms are building what I call “invisible barbed wire” around our lives. We are promised more freedom, more openness, more mobility… (but) it’s the emancipation of a just-released criminal wearing an ankle bracelet.
71% of Facebook users exhibited some form of “last-minute” self-censorship over 17 days…. More specifically, users refrained from sharing 33% of the posts, and 13% of the comments, that they began writing.
Surveillance in French means to watch from above and sousveillance means to watch from below. In a surveillance society, each individual should have the right to also have their own camera, that creates a symmetry.
Our society stands at a crossroads. On the one hand we have what appears to be almost an instinctual notion to record and document everything, maybe as some way to feel that our small selves are connected to a greater human experience. …
On the other hand, we’ve thrown caution to the wind with sometimes over-zealous collecting and sharing; behavior made so easy — almost too easy — that our thoughts pour out of our heads and onto servers in the cloud before we’ve had time to stop and consider the repercussions.
the right to be forgotten, as it has become known, could complicate the collection and digitization of mundane public documents — birth reports, death notices, real estate transactions and the like — that form a first draft of history. “Today, e-mail, Facebook, Twitter — this is the correspondence of the 21st century,” said Jean-Philippe Legois, president of the Association of French Archivists, which has around 1,700 members. “If we want to understand the society of today in the future, we have to keep certain traces.”
Many mobile operators offer child-tracking at extra cost, but the number of free tracking applications is growing fast. Life360 rocketed from 1m registered users in 2010 to nearly 26m now. Berg Insight, a research firm, reckons that 70m Americans and Europeans will be tracking family members by 2016